CDG Children’s Book


The story line outlines the adventures of a little boy who moves around differently, communicates differently and goes on an adventure with his two friends to find the “glycan fruit” he has been searching for. The story uses subtle illustrations and words to teach the message of “being different is OK”, and that children with disabilities can overcome adversity with determination, be heroes, and live an inspiring life.


We all know how important Children’s books are for young developing minds. Amour Fund is proud to work on a children’s story book with Nare Garibyan – a talented author and journalist based in Los Angeles.

To bring this story of acceptance, bravery and hope to our Community, we need your help. 

Your generous donations will assist us to fund the illustration, design, printing, and publication of a children’s story book inspired by a boy, who lives with a rare disease, called Congenital Disorders of Glycosylation (CDG). This young boy lives with CDG every day with courage, hope, resilience, joy and laughter despite the challenges he faces due to CDG.

We hope that the story in this book will create an environment to teach children and families that people can be their own heroes, regardless of the obstacles. We also hope that this book will teach compassion and kindness towards those with differences and show that it’s ok to be different.

Every donation amount will help us bring this book closer to reality. Your contribution will help raise awareness of CDG, rare diseases and disabilities in general. All proceeds from the sale of the book will be used to fund CDG research.

We are also offering the fundraising level incentives listed below to kick off this campaign in hopes that many of our contributors are interested in providing a sponsorship toward this project.

Donation Levels and Incentives:

  • Friend: $100 – first edition book
  • Supporter: $250 – signed first edition book
  • Champion: $1,000 – 2 signed first edition books and framed book cover
  • Gold Sponsor: $5,000 – signed first edition books, framed book cover and sponsorship recognition in book with logo

For $1,000 and larger donations please contact us directly to donate to eliminate fees. 

All donations are tax deductible.

Please join our efforts and help us bring this project to life.

GoFundMe Campaign Link:

Gold Sponsors:


Personal Info

Donation Total: $100.00